Saturday Update: Today was the charity event and it was a big success. With your support, our team ended up the top team fund raiser and I ended up one of the top ten individual fund raisers (out of 4,500 participants). This is a direct result and expression of your support. I thank you!
I don’t often allow my non-professional life to seep into this blog, so this post represents a rare violation of this habit…
This Saturday, I’m participating in a fund raising event called the Race for Every Child. My team in this event is raising money for a foundation started by our friends Gabi and John Conecker.
The Conecker’s son, Ellliott, was born almost two years ago (the same time as our son, Max) afflicted with a devastating genetic disorder virtually unknown to science. They soon discovered that families all over the country are going through something similar each year (c.f., this New Yorker article).
Their foundation helps raise awareness and more importantly fund research to better understand and treat these disorders. (The foundation directly supports the research efforts of a world class neurogeneticist at Children’s National Medical Center who is making real progress into understanding the impact of these mutations.)
Anyway, if this type of cause resonates, please consider donating something to the effort sometime between now and Saturday. You can learn more about the foundation and donate here.
If you do donate, please send me an e-mail at [email protected] so I can thank you personally.
If this type of cause doesn’t resonate, please disregard. We’ll return shortly to our regularly scheduled programming.
Of course I’ll donate. I admire your care. Seeing this diversion from “regularly scheduled programming” helps to soften and slow me down.